Humanity · They Were Not Like This Last Week

For anybody visiting an older relative who has changed · 13 minutes

Confusion that arrives in days is not dementia and not old age. It is usually a treatable illness wearing a frightening disguise — and the person most likely to spot it is the visitor who knew them last week.

Delirium affects a large share of older people in hospital and a great many at home during any illness. It is defined by a change: an acute drop in attention and clarity, fluctuating through the day, on top of whatever that person was like before. It is missed most of the time, for two reasons that have nothing to do with medicine. The quiet form — drowsy, withdrawn, saying little — is commoner than the agitated form and looks like a settled patient. And nobody on the ward knows what “normal” was for this person, because nobody wrote it down. You know.

Hours to daysthe tempo that separates delirium from dementia
The quiet kindis commoner, and is missed far more often
Often reversibleonce the cause on the short list is found
“He was doing his own shopping last Tuesday.” That sentence is a clinical observation, and it is the one nobody else in the building can make. This page turns it into something a doctor can act on.

What changed, and how fast

For each of these, say how today compares with the person's ordinary self — not with what an older person is supposed to be like. The tool reads the pattern: which parts changed, how quickly, and whether they come and go. Nothing is saved, nothing leaves the page, and this cannot diagnose anything. It exists to turn what you already know into a sentence a clinician can use.

If you are not sure of a baseline, use the last time you had a proper conversation with them and answer from that. “I do not know” is a legitimate answer to give a doctor too — say when you last saw them well.

Holding attention — following a conversation, keeping the thread

Knowing where they are, and roughly when

Making sense — words, names, finishing a sentence

Seeing or hearing things that are not there, or mistaking people

Sleep — awake at night, asleep in the day

Getting about — walking, standing, transfers

Eating and drinking

Continence

The twenty-second test: the months of the year backwards from December

Try it gently, and only if they are willing. Faltering on something they could have done last month is a real finding — and doing it easily is worth reporting too.

Which describes today better?

Both are delirium. The quiet one is commoner and is the one recorded as “settled” or “a bit tired today”.

Where are they?

When did the change start?

Anything new in the last few days?

If more than one applies, pick the one that worries you most — the list below covers the rest.

What it is, and what defines it

The quiet kind, which is most of it

Not dementia, and not simply old age

Delirium

  • Starts over hours or days
  • Attention is the main casualty
  • Fluctuates markedly through the day
  • Often drowsy or hyper-alert
  • Seeing things is common
  • Usually a physical cause to find
  • Frequently reversible

Dementia

  • Develops over months and years
  • Memory and word-finding come first
  • Relatively stable day to day
  • Alertness is usually normal
  • Less common early on
  • No single treatable cause
  • Progressive, though treatable in parts
The combination that is missed most. Somebody with dementia who suddenly gets much worse over two days has almost certainly got delirium on top of it — and that is the situation most often written off as “the dementia progressing”. Dementia does not deteriorate in forty-eight hours. Having dementia makes delirium several times more likely, not less worth investigating, and the change is just as treatable.

The short list of things to look for

  1. Infection — urine and chest most often, and in an older person often without a fever and without them complaining of anything.
  2. Drugs, new or newly stopped. Anything with a sedating or anticholinergic effect: some bladder tablets, older antihistamines, some antidepressants, opioids, sleeping tablets. Stopping alcohol or long-term sleeping tablets abruptly is its own cause, and it is dangerous.
  3. Dehydration and constipation, and a bladder that is not emptying. Unglamorous, extremely common, and each of them fixable within hours. Urinary retention in particular can present as nothing but confusion.
  4. Pain that nobody has asked about. Somebody who cannot explain that their hip hurts may show it only as agitation. Untreated pain causes delirium; so does over-sedation for it.
  5. Metabolic things — low sodium, high or low blood sugar, kidney or liver trouble, low oxygen. All are blood tests, and all are treatable.
  6. The brain itself, less often. A stroke, a bleed after a fall, a seizure. Sudden weakness or drooping on one side, or confusion after a bang on the head, changes the pathway entirely and needs emergency assessment.
The one question that finds most of it. “Has anything been looked for — urine, chest, bloods, bowels, bladder, and the medication list?” Those six cover the large majority of causes, and asking for them by name is more useful than asking whether somebody is confused.

What makes it worse, and what a visitor can actually do

Sedation, restraint, and the thing not to ask for

What to say, in six sentences

“This is a change. On Sunday they were doing X; today they cannot do Y.”

“I think this may be delirium. Has it been considered and written down?”

“Has anything been looked for — urine, chest, bloods, bowels, bladder, medication?”

“Which of their medicines could be doing this, and can any be paused?”

“They are quiet rather than agitated. I know that is the kind that gets missed.”

“Can they have their glasses, their hearing aid, a clock, and to be got up in the day?”

The first sentence does most of the work, because it supplies the one piece of information the notes do not contain. The fifth exists because a quiet patient has to be actively brought to attention.

What people are told, and what is so

Believed

  • Old people get confused in hospital; it is expected
  • He was fine on the ward round, so it is nothing
  • She is quiet and settled, so she is comfortable
  • This is the dementia getting worse
  • Confusion at ninety cannot be treated
  • Something to calm him down is the answer
  • Visitors overstimulate; better to stay away

Actually

  • Common is not normal — it is a sign of illness to investigate
  • Fluctuation is a defining feature, not a reassurance
  • The quiet form is commoner and is missed more often
  • Dementia does not deteriorate in two days
  • Much of it resolves when the cause is found
  • Sedation treats the disturbance, not the cause, and has risks
  • Familiar people are among the few things that help

The drill: 16 decisions

Sixteen ordinary moments — a father who is suddenly quiet, a mother who was lucid at the ward round, a new bladder tablet, a nurse who writes “pleasantly confused”. Most have an instinctive answer that sounds sensible and is wrong. Pick your move; every answer explains why.

The card

Print it, fill in the left-hand side while you still can, and hand it to the nurse in charge.

WHO THIS PERSON IS, AND WHAT CHANGED

A WEEK AGO, THEY COULD

  • Conversation: ____________________   Walking: ____________________
  • Washing/dressing: ____________________   Managed at home: ______
  • Glasses ______ Hearing aid ______ (where kept: ____________)
  • Called: ____________   Calms them: ____________________

TODAY, THE CHANGE IS

  • Started on ______   Comes and goes? ______
  • Attention ______ Orientation ______ Speech ______ Sleep ______
  • Quiet and drowsy, or restless? ____________________

MY SIX SENTENCES

  • This is a change — on ______ they were doing ____________
  • I think this may be delirium. Is it in the notes?
  • Urine, chest, bloods, bowels, bladder, medication — all checked?
  • Which medicine could be doing this?
  • Glasses, hearing aid, clock, up in the day, sleep at night?
  • If no better in 24 hours, what changes?

SAME DAY / 112

  • New weakness or drooping on one side, or trouble speaking — 112
  • Confusion after a fall or a bang on the head — same day
  • Not passing urine, or no fluids for a day — same day
Common is not normal. Confusion that arrives in days is a symptom of something else — and the person who knew them last week is the one who can prove it is new.