For anybody visiting an older relative who has changed · 13 minutes
Confusion that arrives in days is not dementia and not old age. It is usually a treatable illness wearing a frightening disguise — and the person most likely to spot it is the visitor who knew them last week.
Delirium affects a large share of older people in hospital and a great many at home during any illness. It is defined by a change: an acute drop in attention and clarity, fluctuating through the day, on top of whatever that person was like before. It is missed most of the time, for two reasons that have nothing to do with medicine. The quiet form — drowsy, withdrawn, saying little — is commoner than the agitated form and looks like a settled patient. And nobody on the ward knows what “normal” was for this person, because nobody wrote it down. You know.
Hours to daysthe tempo that separates delirium from dementia
The quiet kindis commoner, and is missed far more often
Often reversibleonce the cause on the short list is found
“He was doing his own shopping last Tuesday.” That sentence is a clinical observation, and it is the one nobody else in the building can make. This page turns it into something a doctor can act on.
What changed, and how fast
For each of these, say how today compares with the person's ordinary self — not with what an older person is supposed to be like. The tool reads the pattern: which parts changed, how quickly, and whether they come and go. Nothing is saved, nothing leaves the page, and this cannot diagnose anything. It exists to turn what you already know into a sentence a clinician can use.
If you are not sure of a baseline, use the last time you had a proper conversation with them and answer from that. “I do not know” is a legitimate answer to give a doctor too — say when you last saw them well.
Holding attention — following a conversation, keeping the thread
Knowing where they are, and roughly when
Making sense — words, names, finishing a sentence
Seeing or hearing things that are not there, or mistaking people
Sleep — awake at night, asleep in the day
Getting about — walking, standing, transfers
Eating and drinking
Continence
The twenty-second test: the months of the year backwards from December
Try it gently, and only if they are willing. Faltering on something they could have done last month is a real finding — and doing it easily is worth reporting too.
Which describes today better?
Both are delirium. The quiet one is commoner and is the one recorded as “settled” or “a bit tired today”.
Where are they?
When did the change start?
Anything new in the last few days?
If more than one applies, pick the one that worries you most — the list below covers the rest.
What it is, and what defines it
It is a change, not a state. The diagnosis rests on a decline from that person's own baseline over hours or days. Without a baseline there is nothing to compare against, which is exactly why a relative's account is not background colour — it is the diagnostic information.
Inattention is the core feature. Not memory: attention. Losing the thread mid-sentence, needing questions repeated, drifting off while you are still talking. If attention is intact, delirium is unlikely; if it is newly impaired, it is the first thing to think of.
It fluctuates, and that is not a contradiction. Someone can be lucid at eleven in the morning and lost by six in the evening. “He was fine when the doctor came” is not evidence against delirium; fluctuation is one of its defining features, and the ward round is a ten-minute sample.
It is a sign of physical illness, not a psychiatric event. The brain is the organ that fails first and most visibly when something else is wrong. The confusion is a symptom in the same sense that a cough is: it points somewhere else.
It is common, serious and frequently reversible. It lengthens hospital stays and carries a real risk of lasting decline, and at the same time a large share of it resolves once the cause is treated. Both halves of that sentence matter: it is neither trivial nor a verdict.
It happens at home too. A urinary infection, a chest infection, dehydration in a heatwave or a new painkiller can produce it in somebody's own kitchen. It does not require a hospital, and it is not a hospital's private problem.
The quiet kind, which is most of it
Hypoactive delirium is the commoner form and the one that gets missed. The person is drowsy, slowed, withdrawn, answering in single words, sleeping through meals. Nothing about that behaviour asks for attention, and on a busy ward it reads as a patient who is comfortable.
“Settled” is the word to be suspicious of. If somebody who talked and joked last week is now quiet and easy to look after, that is a change, and a change is the whole point. The agitated form gets noticed because it is inconvenient; the quiet form is convenient, which is why it is dangerous.
The outcomes are not better for being quiet. If anything, hypoactive delirium is associated with worse outcomes, largely because it is recognised later and its cause is treated later.
Test attention, gently, rather than testing memory. Ask them to say the months of the year backwards from December, or the days of the week backwards. Faltering on that when they could have done it last month is a real finding, and it takes twenty seconds.
Say the word. Staff respond to “I think this is delirium, he was completely himself on Sunday” in a way they do not respond to “he seems a bit confused”. Naming it puts it in the notes, and what is in the notes gets looked for.
Not dementia, and not simply old age
Delirium
Starts over hours or days
Attention is the main casualty
Fluctuates markedly through the day
Often drowsy or hyper-alert
Seeing things is common
Usually a physical cause to find
Frequently reversible
Dementia
Develops over months and years
Memory and word-finding come first
Relatively stable day to day
Alertness is usually normal
Less common early on
No single treatable cause
Progressive, though treatable in parts
The combination that is missed most. Somebody with dementia who suddenly gets much worse over two days has almost certainly got delirium on top of it — and that is the situation most often written off as “the dementia progressing”. Dementia does not deteriorate in forty-eight hours. Having dementia makes delirium several times more likely, not less worth investigating, and the change is just as treatable.
The short list of things to look for
Infection — urine and chest most often, and in an older person often without a fever and without them complaining of anything.
Drugs, new or newly stopped. Anything with a sedating or anticholinergic effect: some bladder tablets, older antihistamines, some antidepressants, opioids, sleeping tablets. Stopping alcohol or long-term sleeping tablets abruptly is its own cause, and it is dangerous.
Dehydration and constipation, and a bladder that is not emptying. Unglamorous, extremely common, and each of them fixable within hours. Urinary retention in particular can present as nothing but confusion.
Pain that nobody has asked about. Somebody who cannot explain that their hip hurts may show it only as agitation. Untreated pain causes delirium; so does over-sedation for it.
Metabolic things — low sodium, high or low blood sugar, kidney or liver trouble, low oxygen. All are blood tests, and all are treatable.
The brain itself, less often. A stroke, a bleed after a fall, a seizure. Sudden weakness or drooping on one side, or confusion after a bang on the head, changes the pathway entirely and needs emergency assessment.
The one question that finds most of it. “Has anything been looked for — urine, chest, bloods, bowels, bladder, and the medication list?” Those six cover the large majority of causes, and asking for them by name is more useful than asking whether somebody is confused.
What makes it worse, and what a visitor can actually do
Glasses and hearing aids are treatment, not comfort items. Somebody who cannot see or hear the room they are in will misinterpret it. Getting the hearing aid out of the locker, with working batteries, does more than most single interventions available on the ward.
Daylight, a clock and a calendar in view. Delirium is partly a failure of orientation, and orientation needs something to orient to. A dark bay with no window and no clock is an environment designed to sustain confusion.
Sleep at night, and out of bed in the day. Night-time observations, moving somebody between bays after dark, and a whole day lying flat all worsen it. It is reasonable to ask whether the four-hourly night observations are still necessary.
Familiar faces and familiar objects. Longer, calmer visits from people they know are among the few things that reliably help. Bring photographs, a dressing gown they recognise, their own hairbrush.
Catheters, drips and cannulas are tethers. Each one is a thing to pull at, an infection risk and a reason to be restrained. Asking “does this still need to be in?” is a legitimate question, not an interference.
Say who they are. Write a short baseline and give it to the nurse in charge: what they were like a week ago, what they normally manage, what they are called, what frightens them, what calms them. A page like that changes how a whole shift treats somebody.
Sedation, restraint, and the thing not to ask for
Sedation does not treat delirium. It treats the disturbance the delirium causes. Antipsychotics are for a narrow situation — distress or danger that has not responded to everything else — at the lowest dose for the shortest time, and they carry real risks in older people including stroke and death.
Sleeping tablets and benzodiazepines usually make it worse, except in alcohol or benzodiazepine withdrawal, where they are the treatment. That distinction matters and is worth stating out loud if somebody's drinking has stopped abruptly.
Non-drug measures first, and they are not soft options. Reorientation, hearing and vision, hydration, pain relief, sleep, mobility, a familiar person: these are the evidence-based treatment, and the drug is what happens when they have failed.
Physical restraint and bed rails increase harm. They raise the risk of injury and of prolonged delirium, and they escalate distress. If somebody is trying to get out of bed, the question is why — pain, a full bladder, fear, needing the lavatory — not how to stop them.
Ask what the plan is when it is not working. “If he is no better in twenty-four hours, what changes?” is the question that turns a stalled situation into a reviewed one.
What to say, in six sentences
“This is a change. On Sunday they were doing X; today they cannot do Y.”
“I think this may be delirium. Has it been considered and written down?”
“Has anything been looked for — urine, chest, bloods, bowels, bladder, medication?”
“Which of their medicines could be doing this, and can any be paused?”
“They are quiet rather than agitated. I know that is the kind that gets missed.”
“Can they have their glasses, their hearing aid, a clock, and to be got up in the day?”
The first sentence does most of the work, because it supplies the one piece of information the notes do not contain. The fifth exists because a quiet patient has to be actively brought to attention.
What people are told, and what is so
Believed
Old people get confused in hospital; it is expected
He was fine on the ward round, so it is nothing
She is quiet and settled, so she is comfortable
This is the dementia getting worse
Confusion at ninety cannot be treated
Something to calm him down is the answer
Visitors overstimulate; better to stay away
Actually
Common is not normal — it is a sign of illness to investigate
Fluctuation is a defining feature, not a reassurance
The quiet form is commoner and is missed more often
Dementia does not deteriorate in two days
Much of it resolves when the cause is found
Sedation treats the disturbance, not the cause, and has risks
Familiar people are among the few things that help
The drill: 16 decisions
Sixteen ordinary moments — a father who is suddenly quiet, a mother who was lucid at the ward round, a new bladder tablet, a nurse who writes “pleasantly confused”. Most have an instinctive answer that sounds sensible and is wrong. Pick your move; every answer explains why.
The card
Print it, fill in the left-hand side while you still can, and hand it to the nurse in charge.
Quiet and drowsy, or restless? ____________________
MY SIX SENTENCES
This is a change — on ______ they were doing ____________
I think this may be delirium. Is it in the notes?
Urine, chest, bloods, bowels, bladder, medication — all checked?
Which medicine could be doing this?
Glasses, hearing aid, clock, up in the day, sleep at night?
If no better in 24 hours, what changes?
SAME DAY / 112
New weakness or drooping on one side, or trouble speaking — 112
Confusion after a fall or a bang on the head — same day
Not passing urine, or no fluids for a day — same day
Common is not normal. Confusion that arrives in days is a symptom of something else — and the person who knew them last week is the one who can prove it is new.