Humanity · Where You Are When It Happens

For the days after a first seizure, or a change in an old one · 14 minutes

A seizure is about ninety seconds long and it stops on its own. What decides whether it costs anything is where the person was standing: the same ninety seconds is a non-event in bed and a drowning in a bath.

People are sent home from a first seizure with two instructions — do not drive, and here is an appointment — and the deaths in the months that follow are mostly drownings in baths, falls from ladders, and burns. Not because the seizures were worse, but because nobody went through the week. This page does one narrow thing: you mark what your own week actually contains, and it sorts it by the kind of consequence a ninety-second absence would have there. Water is not the same kind of problem as stairs. Then it gives the substitution for each kind, and lists everything that needs no change at all — which is most of it.

The bath is the onethe commonest preventable death after a first fit
Five minutes is the linelonger than that, or one after another, is an emergency
Most of the week is finea page that says stop living gets closed
Nothing goes in the mouth of somebody having a seizure. Not a spoon, not fingers, not water, not medicine. They cannot swallow their tongue, and the injuries from being held down or having something forced between the teeth are the injuries bystanders actually cause.

Your own week, sorted by what it would cost

Nothing is saved and nothing leaves the page. Mark what you genuinely do, not what you might. If somebody is fitting as you read this, the first questions cover it.

When was it?

Which is this?

Any of these true?

Who is around?

What does your week contain?

Anything on this list, in the days before?

What to do while it is happening, which is mostly nothing

The emergency version is specific. More than five minutes of continuous seizing, or one seizure after another without recovery in between, is status epilepticus, and it is treated as an emergency because the risk rises with every minute. In Europe the number is 112. Say the words "seizure", "still going", and how long it has been.

Why the witness matters more than any scan

The fortnight afterwards, and the driving question

What people believe, and what is so

Believed

  • Put something in the mouth so they do not swallow their tongue
  • Hold them still until the shaking stops
  • Always call an ambulance for a seizure
  • A normal scan or tracing means it was not a seizure
  • You can tell it was epilepsy from the shaking
  • The main thing to give up is driving
  • Showers and baths are much the same

Actually

  • Nothing in the mouth; the tongue cannot be swallowed
  • Move the furniture instead; holding causes injuries
  • Over five minutes, hurt, in water, first ever, pregnant — then yes
  • Both are often normal; the description decides it
  • The diagnosis is the witness account, not the movement
  • The bath kills more people than the road does after a first fit
  • A seizure in a bath drowns you; in a shower it usually does not

The drill: 16 moments

Sixteen ordinary rooms — the man on the kitchen floor with a crowd around him, the mother who has been told not to drive and nothing else, the shift worker who missed two doses, the friend filming instead of helping. Each has an obvious kind thing to do that makes it worse. Pick the move; every answer explains why.

The card

Print it, put one copy on the fridge and one in a bag. It is written for whoever is standing there, not for you.

SOMEBODY IS HAVING A SEIZURE

DO

  • Note the time it started. Say it out loud so somebody remembers.
  • Move furniture away. Something soft under the head.
  • When the shaking stops: onto the side. Stay until they know where they are.
  • Quiet, no crowd, no questions they cannot answer yet.

DO NOT

  • Nothing in the mouth — no spoon, no fingers, no water, no tablets.
  • Do not hold them down. Do not move them unless they are in danger.

CALL 112 IF

  • Longer than 5 minutes · another before recovery · injured
  • In water · pregnant · diabetic · first one anybody has seen
  • Breathing does not settle, or they do not come round

WRITE DOWN WITHIN THE HOUR

  • Length ______ What happened first ______ Eyes open? ______
  • Colour of face ______ Stiff before shaking? ______
  • Confused for how long after ______ Sleep, alcohol, missed dose? ______
The witness account is the diagnosis. The bath, the ladder and the road are the risks — most of the week needs no change at all.